In 2010 we got a diagnosis of ulcerative colitis for our son Isaac who was then 27 months old. For a year and a half we had been concerned about his persistent soft stools. Now that we're going down the road of living with IBD in our house, we want to be able to share our story, connect with similar families or individuals, and increase our awareness of the experience of others.

Some of our related interests are diet, kids and families with IBD, and discussing and sharing experiences.

Saturday, November 19, 2011

healing or not healing....

Well, without steroids we did notice natural healing, but the next month we again saw runny stools and blood evident...  There isn't a lot of blood, so we and the doctor have been waiting to see what happens.  Isaac's health otherwise is great.

At our doctor's appointment yesterday we scheduled another colonoscopy and talked about where this is going.  Our doctor is interested in Remicade or Humira and wants us to think about that.  They also want to double check on the diseased parts to re-rule out Crohn's (in thinking ahead about a colectomy).

My gut reaction is to hold off on everything so as to not accelerate towards surgery.  It seems like Isaac is thriving well in spite of the gut condition, and more time allows us to check allergies and other food reactions and maybe get a better grasp of the situation and be able to handle it without the exotic medications or removing bowels.  Also, it allows time for more treatments to develop.