In 2010 we got a diagnosis of ulcerative colitis for our son Isaac who was then 27 months old. For a year and a half we had been concerned about his persistent soft stools. Now that we're going down the road of living with IBD in our house, we want to be able to share our story, connect with similar families or individuals, and increase our awareness of the experience of others.

Some of our related interests are diet, kids and families with IBD, and discussing and sharing experiences.

Monday, April 11, 2011

the latest latest

Our doctor wants to

a) increase the sulfasalazine
b) start Imuran
c) hit the steroids

And of course we're torn. We want to do whatever it takes for Isaac to be at his optimum health in his condition, but we also want to do the least drastic thing. Bonnie is more at peace with the meds. I am less.

Two more stools today with blood present. We need to do something. Something I wanted to check is why not try another 5-ASA drug other than sulfasalazine. We also still have the SCD to try out instead of our vegan efforts. We also have a battery of other things to try, but we don't want to waste too much time trying things that won't work. And that's exactly the doctor's perspective I think.

Here is a graphic so you can see our stool report since we started taking careful records in February. Sorry it's so non viewer friendly. The lightest are caution #6 stools. The bright red are #7 stools, and the dark red cells indicate blood.


2/24


5.5


 


n/a


 


3,6.5


 


3,4


 


n/a


 


3,4


 


n/a


 


3


 


n/a


 


n/a


 


3,4


 


4


3/8


4,7


 


7


 


5


 


5,6,7


 


4,5


 


n/a


 


n/a


 


3,4


 


3


 


4,5,6


 


5


 


n/a


 


3,4 5,6


 


5


3/22


6,7


 


3,4 5,6


 


3,6


 


4


 


4,6 4,5


 


n/a


 


3,5


 


3,5


 


n/a


 


3,5


4/1


6b 6b 6b


 


4,6b


 


6,7 5


 


5,6 5,6b


 


7b


 


6b


 


6b


 


3,6


 


6,7 6,7


 


4,6(b)


 


7b 6b

4 comments:

  1. Two things to suggest to your Dr.:
    1. Heavy probiotic supplementation (10+ BCFU/day--that's a lot for a kiddo) combined with...
    Note: Probiotics can be administered via enema also--straight to the source.

    2. An elemental diet you can do at home. Check out Absorb Plus, on Jini Patel Thompson's web site.

    Both these are 'conventional' medicine, and have been proven at least as effective (if not more) than the drugs your Dr. is suggesting, but without the side effects.

    One quick note, since you haven't tried SCD...I went through almost a year of meds (imuran, prednisone, colazol, asacol) and none worked. 4 days after starting the SCD, I noticed a difference for the better. It's worth a shot.

    Matt (@naturaldigestivehealing.com)

    ReplyDelete
  2. I want to hear more about the Imuran. I just didn't like what I heard about it form Bonnie the other day, so I'm hoping you heard good news about it!
    -nic

    ReplyDelete
  3. yes, but today we finally had a non red day! however, it also ended with a strange bad earache.... :(

    ReplyDelete