This was the report by Bonnie:
Deep Breath In
A friendly hug outside Whole Foods |
I was looking forward to Isaac getting the treatments and excited about the possibilities it held for him. I wasn't looking forward to a 40 minute drive each morning, waiting in a waiting room for 4 hours total with my other two kids, and then driving back 40 minutes to get home. But we (I) pulled it all together, gritted our (my) teeth, and "happily" went along with it. Deep breath in.
In our van |
Now, I won't drag it out. I'll let you know right now that after the first 2 hours in the waiting room, I was politely told that my kids were too loud for this office's reception area and that I would have to find some place else to wait. A really deep breath in. Now, I won't deny that my kids made noise while we were there. They're kids. Duh. But I will defend them and say that they were well behaved and getting along and making the best of being in a waiting area that definitely wasn't made with a single child in mind. So where did we go from here? Our van. Yep, we spent 4 hours each day waiting in our car for Isaac to get his treatments. Deep breath in...
On the flip-side, Isaac did really great. He had a good time and behaved himself just fine while having the treatments done. It's too soon to tell how well it will work for his bowels, but we can already tell a difference in his concentration, speech, and sleeping behaviors. And chances are that we will see some results in the next 1 to 6 weeks.
What do you think it is? |
All things considered, it was a good week. Our lunch breaks were spent at the dinosaur museum and Whole Foods. We got to dig for dinosaurs and learn about malacology. We played at the park and watched movies on the laptop. We survived. Deep breath out.
Hi! I have just stumbled across your blog and I want to thank you! My son was diagnosed with UC a few days after his second birthday last October. Fortunately, he is doing very well on Pentasa without the ups and downs. There are things he can't eat though. I couldn't find anyone else with a young one with UC and I appreciate your blog greatly. I am constantly checking poo and worrying about diet and growth. Your son is absoloutely adorable and I look forward to your updates from here on about how he is doing. I will keep him in my prayers! Again, THANK YOU for all the writing you do!
ReplyDeleteWell, and thanks for reading. Keep us posted about your son in the future.
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