In 2010 we got a diagnosis of ulcerative colitis for our son Isaac who was then 27 months old. For a year and a half we had been concerned about his persistent soft stools. Now that we're going down the road of living with IBD in our house, we want to be able to share our story, connect with similar families or individuals, and increase our awareness of the experience of others.

Some of our related interests are diet, kids and families with IBD, and discussing and sharing experiences.

Thursday, June 9, 2011

Isaac and Imuran, so far so good

Isaac continues to do well. His latest bloodwork showed lower 6-TG levels than his doc wants to see, so we are slightly increasing his consumption of Azathioprine (Imuran). Instead of every other day doses he is now getting 5 doses a week. We continue to taper his prednisolone. We have another doctor's appointment tomorrow.

6-TG is a derivative of thiopurine. There is a lot to learn. If you're interested, you can start with this article which deals specifically with IBD. In that article, you, like me, might get a little excited about giving such a drug to a young'un. But having said that, our doctor understands and is concerned about the risks and we are monitoring Isaac closely while he is introduced to this drug (for the first several months) to make sure his body tolerates it just fine.

The poop scoop: We remain in a phase of normal poops.

4 comments:

  1. good timing on the update, just today I wondered how my nephew was doing with the medicine! -nic

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  2. Thanks for the update, and I'm sorry it took me over a month to discover all these wonderful blogs with news I was wanting to hear!

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  3. Hello! Just wanted to let you know our family in Australia going through the same thing, our daughter diagnosed with UC at aged 15 months last year. She is now 24 months and we continue to try to get into remission. Thoughts and empathy are with you and may your little man continue to do well.

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  4. Thank you for writing. Please keep us posted.

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